WASHINGTON, Dec. 9, 2020 /PRNewswire/ — The American Association of Kidney Patients (AAKP) released the following statement regarding the U.S. House of Representatives’ passage of legislation authorizing immunosuppressive drug coverage for kidney transplant patients, an action taken on the evening of December 8, 2020:
“The American Association of Kidney Patients, the nation’s largest kidney patient organization, thanks Members of the U.S. House of Representatives for elevating the democratic ideal of bipartisanship and the voices of kidney patients through passage of immunosuppressive drug coverage for kidney transplant recipients. COVID-19 poses a serious threat to American kidney health, has resulted in increased incidents of acute kidney injury (AKI), and created new concerns for current and future dialysis and organ transplant needs. The decision to donate a kidney to save another human life is an inherently American act of bravery and selflessness and Congress has honored generations of kidney donors, patients, and medical professionals who have worked to remove this barrier to increased kidney donation and less time on organ waitlists. AAKP thanks Speaker Nancy Pelosi (D-CA), Minority Leader Kevin McCarthy (R-CA), Representatives Ron Kind (D-WI), Michael Burgess (R-TX), Jimmy Panetta (D-CA), Jason Smith (R-MO), and all other Members for their principled leadership and respect for kidney patient insights. We also extend our deep appreciation to our strategic allies including U.S. Secretary of Health and Human Services Alex Azar, Comptroller General of the United States Gene Dodaro, and Congressional Budget Office Directors Phillip Swagel, predecessor Keith Hall, and their appointed and career staffs for their respect and substantive engagement with kidney patients and AAKP on this issue.
AAKP now respectfully calls upon Senate Majority Leader Mitch McConnell (R-KY) and Senate Minority Leader Chuck Schumer (D-NY) to listen closely to our fellow kidney patients and donor families within their respective states and across America, and immediately move forward with bipartisan Senate passage of immunosuppressive drug coverage. Further, we call upon President Donald J. Trump to sign this legislation when it is presented to the White House, and, by doing so, further extend his record of historically significant achievements for greater kidney patient consumer care choice and the transformation of outdated status quo kidney care, consistent with the widely acclaimed and bipartisan supported 2019 Executive Order on Advancing American Kidney Health.“
In 2019, AAKP launched The Decade of the Kidney™, a strategic effort to organize kidney patient consumers nationally and globally to drive policies to prevent kidney injury and disease, support greater patient care choice, drive innovations including artificial implantable and wearable kidneys, and timely access to treatment options including preemptive kidney transplants.
In November of 2020, over 25 AAKP kidney advocates were recognized with Presidential Volunteer Service Awards (PVSA) for their ongoing advocacy for kidney transplants and response to the COVID-19 pandemic (read announcement). AAKP patient volunteers accelerated the organization’s national and global impact through sophisticated virtual platforms, international patient group partnerships, clinical journal editorials, television, radio, social media, and a growing Patient Ambassador Initiative. At the start of the COVID-19 pandemic, AAKP changed all 2020 events to free virtual access, prioritized COVID-19 topics, and leveraged tactics to engage a wider audience. In the past eight months, AAKP has broadcasted expert COVID-19 insights through one global and two national virtual events, a dozen webinars, and launched advocacy campaigns to highlight disparities in minority and kidney patient representation in COVID-19 clinical trials and vaccine distribution protocols. Viewership for 2020 AAKP programs now exceeds 80,000 people across 70 countries and is growing rapidly. International and national program faculty has included 90 medical practitioners and researchers, and 60 patient experts. The AAKP Global Summit on Kidney Innovations, conducted in partnership with The George Washington University School of Medicine and Health Sciences, alone reached over 20,000 patients and professionals worldwide in July of 2020.
AAKP Board Members and patient members play key roles in top federal initiatives including: implementation of the Executive Order on Advancing American Kidney Care; the National Institutes of Health/National Institute of Diabetes and Digestive and Kidney Diseases (NIH/NIDDK) Kidney Precision Medicine Project (KPMP); the U.S. Food and Drug Administration and ASN partnership, the Kidney Health Initiative (KHI); and the U.S. Department of Health and Human Services Kidney Innovation Accelerator, or KidneyX.
AAKP National Board Officers and Directors
- Richard Knight, MBA, President; transplant recipient
- Edward V. Hickey, III, USMC, Vice President; Chair, Veterans Health Initiative; kidney patient
- Daniel Abel, Secretary; transplant recipient
- Paul T. Conway, Immediate Past President; Chair of Policy and Global Affairs; transplant recipient
- Kent Bressler, MA, RN, pre-emptive transplant recipient
- Patrick O. Gee, Sr., transplant recipient
- Doug Johnson, MD, Vice Chairman of Dialysis Clinic, Inc.
- Jennifer Jones, USMC; transplant recipient
- Janice Lea, MD, MsC, FASN, Professor of Medicine at Emory University; Clinical Director of Nephrology; Chief Medical Director of Emory Dialysis
- James W. Myers, III, transplant recipient
- David Rodriguez, transplant recipient
- Dale Rogers, transplant recipient
- Suzanne Ruff, living organ donor
- Sara Eve Schaffer, MBA, MA, RD; Executive Director for the Health Services Advisory Group, Inc.
- Lana Schmidt, MBA, transplant recipient
- Barry Smith, MD, PhD, Director of Dreyfus Health Policy and Research Center
AAKP Medical Advisory Board
- Dr. Stephen Z. Fadem, MAB Chairman, Clinical Professor of Medicine at Baylor College of Medicine Section of Nephrology
- Dr. Akhtar Ashfaq, Senior Vice President of Clinical Research & Development and Medical Affairs at OPKO Renal
- Dr. Timothy Bunchman, Professor and Director Pediatric Nephrology at Children’s Hospital of Richmond
- Dr. Richard Glassock, Professor Emeritus of David Geffen School of Medicine at UCLA
- Dr. Frederick J. Kaskel, Director of the Division of Pediatric Nephrology, Children’s Hospital at Montefiore
- Dr. Peter A. Laird, Internal Medicine Specialist at Kasier (ret.)
- Dr. Nathan Levin, Founder and past Medical and Research Director of Renal Research Institute
- Dr. Robert Miller, Pediatric Nephrologist at New Mexico Children’s Kidney Center
- Dr. William B. Mitch, Professor of Medicine at Baylor College of Medicine Section of Nephrology
- Dr. Keith Norris, Professor of Medicine at David Geffen School of Medicine at UCLA
- Dr. Rebecca Schmidt, Professor and Chief of the Division of Nephrology at West Virginia School of Medicine
- Dr. Thomas G. Peters, Professor of Surgery at University of Florida
- Dr. Leslie P. Wong, Chief Medical Officer of Nephrology Care Alliance and Associate Medical Director of Cleveland Clinic ACO
Established in 1969, AAKP is the oldest and largest independent kidney patient organization in the United States, with growing international impact through a global network of patient advocates, kidney researchers, medical innovation leaders, and policy influencers. AAKP is among the strongest advocates for kidney patient consumer care choice and the full alignment of kidney care treatment to the aspirations of individual patients, including their pursuit of full-time work, professional careers, families, home ownership, and a secure retirement. From 1969-1973, AAKP patients led the effort in the U.S. Congress, alongside senior White House officials, to establish the End Stage Renal Disease Program (ESRD), which has saved over a million lives through modern dialysis coverage as administered by the Centers for Medicare and Medicaid Assistance. For more information, visit www.aakp.org. Follow AAKP on social media: @kidneypatient on Facebook, and @kidneypatients on Twitter.
Jennifer Duplessie, Marketing and Communications Manager
SOURCE American Association of Kidney Patients